Support organizations for people with Duchenne
Although Duchenne is a rare disease, it boasts a strong network of support. The organizations listed below are committed to helping people living with Duchenne and their loved ones through research, education, advocacy, and community.
The Akari Foundation
The Akari Foundation works to empower the Hispanic community with resources, awareness, advocacy, and education on rare diseases, with a focus on Duchenne.
Jett Foundation
Jett Foundation empowers people and families impacted by Duchenne through transformative programming, educational opportunities, and ongoing support. Offerings include family financial assistance, virtual support groups, and Camp Promise, a free, week-long camp and year-round program for kids, teens, and adults with neuromuscular disorders.
Muscular Dystrophy Association
For over 70 years, Muscular Dystrophy Association (MDA) has led the way in accelerating research, advancing care, and advocating for the support of people living with muscular dystrophy, ALS, and related neuromuscular diseases. MDA's mission is to empower the people we serve to live longer, more independent lives.
Little Hercules Foundation
Little Hercules Foundation serves the rare disease community through access advocacy and policy to ensure all rare disease patients get access to medically necessary treatments and care.
Cure Duchenne
Cure Duchenne is committed to improving the lives of everyone affected by Duchenne through accelerating research to find the cure, improving care and empowering the Duchenne community.
Parent Project Muscular Dystrophy
A leading nonprofit organization dedicated to advancing research, raising awareness, and providing support for people affected by Duchenne. For over 30 years, PPMD has worked tirelessly to accelerate the development of treatments, improve care standards, and advocate for policies that benefit the Duchenne community. PPMD also offers educational resources and connects families with a network of support.
Team Joseph
A non-profit founded by a mom whose son was diagnosed with Duchenne as a young boy. Their mission is to help fund cutting-edge research to find a cure for Duchenne and to support families affected by the disease. Team Joseph raises awareness, provides financial assistance for medical needs, and advocates for better care options for those living with Duchenne.
ITF Therapeutics does not control or endorse third-party organizations. As such, ITF Therapeutics makes no representation as to the accuracy or any other aspect of the information supplied by these organizations or contained on these websites. The information provided is meant for informational purposes only. It is not meant to replace your healthcare provider's medical advice.
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